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Polycystic Ovarian Syndrome

resources for PCOS

 

Where to Start
Information and Resources

Where to Start for Information on Polycystic Ovarian Syndrome (PCOS) -- also known as Stein Leventhal Syndrome, PCOD (polycystic ovary disease, Syndrome O and Syndrome X:

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Information and Resources on PCOS:

  • Polycystic Ovarian Syndrome -Great overview of PCOS by Ferring Fertility.
  • PCOS quiz- Although not intended as a medical diagnostic tool, this is a really helpful first step in determining if you may have PCOS. If you suspect that you have PCOS, make an appointment with a reproductive endocrinologist for diagnosis and treatment.

  • The National Women's Health Information Center of the US Department of Health and Human Resources has a great informational page on PCOS. This is a good place to start.

  • Managing PCOS: A Practical Guide - This is one of the best websites available for PCOS that I've found, and I've looked at plenty. It is sponsored by the Jean Hailes Foundation for Women's Health in Australia, and includes thorough sections on diagnosis and symptoms. Information on medical and lifestyle management of this disease is particularly informative. Although the site does not give any detail on alternative/natural therapies for treating PCOS, it does have a very good introductory explanation of what is meant by alternative/natural/complementary medicine.

  • Polycystic Ovarian Syndrome Association is a national support and educational group for women with PCOS. This is a wonderful resource with lots of reliable information. They also have active forums. The FAQ included with the General Discussion Forum is one of the best introductions to PCOS that I've found, although it focuses mostly on the insulin resistance component of Polycystic Ovarian Syndrome.

  • SoulCysters.com- I would love this site for the name alone, but it is also a great educational site with an active forum for online support. They have a research section that I particularly like. They also sell the PCOS Guide for Cysters that you will probably want to buy after you have received a definitive diagnosis of PCOS.

  • The PCOS Multidisiplinary Clinic at UC San Francisco has a website with some resources. They have a good book list and answers to some commonly asked questions.

  • PCOS Today is an online magazine for women with PCOS. It is also available in hardcopy or as a pdf download. I interviewed the founder of the magazine, Linda Harvey, about PCOS for the Creating a Family show. This is a good source for up to date information.

  • PCOSInfo- This website is a good source of current information and you can subscribe to the RSS feed to stay current.

  • Project PCOS is an advocacy site for educating the public and the medical profession about this disease/syndrome. There is a good and succint Q and A and a short PCOS factsheet on this site.

  • Natural Health Solutions for PCOS - This website is sponsored by Dr. Nancy Dunne, a Naturopathic Physician that specializes in treatment of PCOS. I weeded out a lot of alternative medicine websites before deciding to include this one. She has balanced advice and seems to endorse a complimentary approach, which incorporates supplements and lifestyle changes in addition to western medical care. She also has a book, The Natural Diet Solution for PCOS and Infertility.

  • Position Statement by the American Association of Clinical Endocrinologists - This 2005 paper discusses the metabolic and caridovasular consequences of PCOS. It is written for doctors, but I didn't think most of it was over my head.

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