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Evaluating Special Needs to See Which One is a Good Fit

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Highlights from December 5, 2012 Creating a Family radio show

The world of Special needs adoptions can be confusing. Parents need to explore the different types of special needs to determine which conditions and issues they can handle and which needs are beyond their comfort level to parent. Our guest, Dr. Mary Staat, Director, International Adoption Center at Cincinnati’s Children’s Medical Center, will walk us through the treatment, prognosis, and long term impacts of the most common special needs. The specific special needs discussed in this course include: cleft lip/palate, the most common heart deformities in infants, limb differences, amniotic band syndrome, Hepatitis B, Hepatitis C, HIV, AIDS, attachment issues, RAD,  imperforated anus, ambiguous genitals, albinism.

  • What are the most common special needs that adoption medicine specialist are seeing now?
  • What are the causes and treatments for cleft lip/palate?
  • Are cleft lips/palates often associated with other conditions or syndromes?
  • What is the prognosis for a child with cleft lip/palate?
  • Does it matter what age the cleft is repaired?
  • How soon after adoption should the cleft be repaired?
  • What are the different forms of heart problems that are usually referred for adoption? VSD (Ventricular Septal Defect), ASD (Atrial Septal Defect), PDA (Patent Ductus Arteriosis), TOF (Tetralogy of Fallot)
  • How are heart conditions in infants treated and what is the prognosis for children born with these different heart conditions?
  • What is albinism and how does it affect the child other than in appearance?
  • What birth marks usually pose more significant problems other than in appearance?
  • Is it possible to get more medical information on a child with Special Needs that has been referred to your family for adoption?
  • What causes limb differences in infants?
  • What is meant by amniotic band syndrome and what defect does it cause.
  • Are there any limb discrepancies that can indicate much more significant problems for the child?
  • What is the long term prognosis for a child with Hepatitis B?
  • How contagious is Hepatitis B? Is the adoptive family at risk for transmission?
  • What are the health implications for Hepatitis B?
  • What are the biggest risk factor for a child to struggle with attachment?
  • What are the short and long term issues for an infant exposed to cocaine and/or heroin during pregnancy?
  • What is Anal Atresia / Imperforate Anus. How is treated and what is the prognosis for a child born with this condition?
  • What other conditions should parents look for if the child that has been referred to them for adoption has Anal Atresia or an Imperforate Anus?
  • What is Ambiguous Genitalia? How is Ambiguous Genitalia treated and what is the long term prognosis for a child born with this condition?
  • What is the long term prognosis for a child with HIV? What is the life expectance of a child with HIV that is being treated with medication?
  • What are the risks of transmission to family members from a child adopted with HIV or AIDS?

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Creating a Family and in particular your radio show has been a lifeline to me over the past 2+ years. In the privacy of my home/car I have been connected with others whose family-building has been challenged and I have had access to invaluable information from experts that have helped us make better decisions. Thank you! ~ S. Potter

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I wanted to thank you for all of the wonderful things you do. We brought our beautiful baby boy home from the hospital on April 2nd. While we waited for an adoption match and then waited for his birth, your podcast and website were a continuous reminder that we were part of an amazing adoption community. It really helped us not feel alone.  ~Sarah S.

I listen to your radio shows daily on my iPod while cleaning, exercising, driving etc. I've learned so much from it, that today in the foster- adopt support group I felt like an all knowing expert, despite the fact, that I have zero experience in the field. Thank you for a wonderful resource! I am spreading the word. ~G. Longley

Thank you so much for your radio show! I was just listening to it, and it's very informative. My husband and I are in the process of adoption, so we read a lot to be able to make informed decisions. Your website is a great resource for us! ~N.M.W.

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I LOVE your show, it's the most helpful, unbiased information I’ve found about infertility and adoption and I'm so thankful for you and your organization. Keep up the fantastic work, you are changing lives. ~ Amanda

So I would like to introduce to you....Z. V.. She is now 11 weeks old. She came from a lovely perfect little frozen embryo, from our 4th round of IVF (2 fresh cycles and 2 FET)...more  ~A. Houston

I'm just writing to say that I've downloaded another bunch of your podcasts onto my iPhone and while I listen to them on my daily commute I silently
thank you for doing such a good job and conducting such brilliant interviews!!!...
more   ~G. Marino

Although you don't know us from Adam, I wanted to drop a line and thank you for the amazing info, sound advice, and encouragement you offer to adoptive and prospective adoptive parents.  We just received our pre-approval for our daughter, W, from China!  You (in book, website, blog, and podcast form) have been there every step of the way in this journey.  ~ J. & C. Morningstar

I just wanted to drop you a note and tell you how much I love your show. I recently got an iPhone and have been listening to them on iTunes. Your "What Adopted Teens Want Their Parents to Know" session was amazing!!!          ~A. Watson

My husband and I are parents through adoption to THE three most incredible children in the world. All via newborn domestic transracial.  I wanted to tell you how much I’ve enjoyed and benefitted from your web site.  I often refer potential adoptive parents who ask me for advice to your site. I especially enjoy your radio shows and today’s show on "Knowing When to Move from Infertility to Adoption" particularly resonated with me. ~N. Ferrari

I have loved, loved this radio show. It has been hands down the most helpful resource on this often painful and confusing journey. ~ R. Butler

I have been listening to lots of your radio shows of late. Great guests and very enlightening always. Thanks so much for keeping us up with the latest.  ~ W. & M. Welch

I just wanted you to know what a tremendous resource and blessing your podcasts have been to my wife and I as we prepare to travel early next month to pick up our new 17 month old son from Colombia...more
~ M. & L. Oakes


I just wanted to share my story since Creating a Family pod casts were so helpful to me when I was infertile. It really helped knowing I wasn't alone and could get the most updated information on my condition. I am almost 32 years old and I have been trying to get pregnant for 6 long years...more ~ J. Mendenhall

 

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We are awaiting the arrival of our child from Ethiopia. I recently took a road trip and downloaded 9 hours of the Creating a Family podcasts and listened to them all. I learned so much. Thanks.        ~J. Madine 

Just home from adopting our son in Colombia. He and we are doing great. Your site and especially podcasts were a tremendous resource to us personally, as well as for a reason we didn't ever expect...more  

~ M. and L. Oakes

 

 

 

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